Just curious if anybody else has heard of the previously unscheduled meeting to take place at the NIH in just two weeks on ME/CFIDS? We've heard from a member...
GAILRONDA@...
Dec 1, 2000 10:01 pm
7610
Gail, I received a message on November, 29, from Donna Dean, to this effect. This had been in the planning, and I was aware it was going to happen before ...
sandy
sanco@...
Dec 2, 2000 2:22 am
7611
"Sandy," Even if you do not have time to go through your e-mail, since you said you received a message about it 2 days ago do you remember what it is about? ...
Jill McLaughlin
amclaughlin1@...
Dec 2, 2000 3:05 am
7612
Jill, This was the meeting announcement that everyone on the DHHS CFSCC list got on November 29. I suspect it's the same one Sandy is referring to: From Donna...
Ray Colliton
colliton@...
Dec 2, 2000 5:04 am
7613
Thanks Ray, but this is the notice for the CFSCC meeting and other related federal meetings being held in conjunction with the AACFS meeting in Seattle in...
Jill McLaughlin
amclaughlin1@...
Dec 2, 2000 5:45 am
7614
In a message dated 12/1/00 9:23:36 PM Eastern Standard Time, sanco@... writes: << I received a message on November, 29, from Donna Dean, to this effect. ...
GAILRONDA@...
Dec 2, 2000 5:50 am
7615
Jill wrote: Thanks Ray, but this is the notice for the CFSCC meeting and other related federal meetings being held in conjunction with the AACFS meeting in ...
Ray Colliton
colliton@...
Dec 2, 2000 5:41 pm
7616
Gail wrote: If you're referring to one that takes place THIS MONTH (not the one in January that Ray thought I was talking of), please do tell us more. If DD ...
Ray Colliton
colliton@...
Dec 2, 2000 5:46 pm
7617
In a message dated 12/2/00 12:50:40 PM Eastern Standard Time, colliton@... writes: << In any event, if NIH is merely conducting a routine part of their ...
GAILRONDA@...
Dec 2, 2000 8:04 pm
7618
Yes, Ray, the following was what I was referring to. Thank you. Sandy ... From: Ray Colliton To: cfsadvocacy@egroups.com Sent: Friday, December 01, 2000 8:03...
sandy
sanco@...
Dec 3, 2000 12:38 am
7619
I suspect numerous NEW SECRET NIH MEETINGS occur at the NIH. Every time Stephen Straus meets AIYH Dr. Gold in the NIH halls they have the equivalent of a...
Jacques Weir
jweir@...
Dec 3, 2000 1:57 am
7620
In a message dated 12/2/00 8:57:52 PM Eastern Standard Time, jweir@... writes: << Every time Stephen Straus meets AIYH Dr. Gold in the NIH halls they...
GAILRONDA@...
Dec 3, 2000 2:55 am
7621
Jacques, I'm not sure mini-advocacy is the correct term. Shouldn't we call it pseudo-advocacy or anti-advocacy? Even the solid research from unbiased...
Jill McLaughlin
amclaughlin1@...
Dec 4, 2000 2:27 am
7622
Speaking of contagion...why is it that the ImmuneSupport information is now largely about "depression" and "coping"? Sounds like the CAA publications. I can...
vogel_frau@...
Dec 4, 2000 7:08 am
7623
Just want to wish all of you a Happy Holiday Season I may not be commenting often, I have several other situations not gathering any dust and also need to be...
dgsaba@...
Dec 4, 2000 2:30 pm
7624
Jo, I find nothing wrong with sitting at the table, in fact would prefer it. Problem is, you have to do more than sit. These people do not. You may be...
Jill McLaughlin
amclaughlin1@...
Dec 4, 2000 3:16 pm
7625
Dear Jo, the the other sick millions out there. your letter is MUCH more like what i have heard from the patients for the past 12 years...they are tired of ...
RESCINDINC@...
Dec 4, 2000 3:23 pm
7626
Just spoke with Janice Ramsden, and as far as she knows there are no upcoming CFS related meetings scheduled at NIH. Dr. Dean was not available and in fact I...
Jill McLaughlin
amclaughlin1@...
Dec 4, 2000 4:09 pm
7627
Jill, Thank you for your astute and succinct reply to my earlier post. I wholeheartedly agree with your first two paragraphs, and am encouraged by the...
vogel_frau@...
Dec 5, 2000 12:33 am
7628
Tom, Agree. And now that you mention it, maybe complex social and psychological factors contributed to Rodney King adopting the "beaten to a pulp" -er-...
vogel_frau@...
Dec 5, 2000 6:16 am
7629
Please remove me from this list ASAP. Thank you...
pdevine49@...
Dec 5, 2000 2:57 pm
7630
Hey, may be truly a double benefit! Seems that CFS patients in general tend to be relatively passive and easily appeased and intolerant of even speaking out or...
Jill McLaughlin
amclaughlin1@...
Dec 5, 2000 6:01 pm
7631
The following is excerpted from Source: http://www.msnbc.com/msn/497726.asp FDA questions Red Cross's blood...
Jean Linn
Jean.Linn@...
Dec 5, 2000 8:21 pm
7632
Hi Jill, i am in favor of ACTing UP. I just don't want testosterone shots to do it. And I don't need them. I am hoping that someone is lobbying in Washington...
Anne-Marie Vidal
shadesofjoy@...
Dec 5, 2000 9:28 pm
7633
Jill wrote: Hey, may be truly a double benefit! Seems that CFS patients in general tend to be relatively passive and easily appeased and intolerant of even ...
Ray Colliton
colliton@...
Dec 5, 2000 9:31 pm
7634
... Agreed, a lot of us have been brought up to be real "people pleasers". Which is great, as long as the people being pleased have your best interests and the...
vogel_frau@...
Dec 5, 2000 10:15 pm
7635
In a message dated 12/5/00 4:31:59 PM Eastern Standard Time, shadesofjoy@... writes: << I am hoping that someone is lobbying in Washington in May...
GAILRONDA@...
Dec 5, 2000 11:32 pm
7636
Ray shares ... Date: Tue, 5 Dec 2000 16:29:52 -0500 From: "Ray Colliton" <colliton@...> Subject: RE: Maybe it's time to "ACT-UP" ??? Jill wrote: Hey, may...
dgsaba@...
Dec 6, 2000 12:18 pm
7637
Wake up ... Cease and Desist: Was filed against the owner of the abcjb.com website... Cease and Decist: included me as I was appointed the overseer for...
dgsaba@...
Dec 6, 2000 3:17 pm
7638
Diana Saba wrote: To help me determine if I want to subscribe or not ... Which one is this one ??? Strict moderation or censorship ??? ...
